Saturday, July 9, 2011

Tell me people, am I going insane?

But now i finally know why i have this pain...

I had pain for a long time and no doctor have listen to me for 3 years. This week I met a doctor at Gottfries clinic in Gothenburg after that i called them and arranged an own referral to the clinic. The doctor noted then that I had fibromyalgia, which I have suspect for many years. I´m so happy to finally find someone that confirms my suspicions.

Fibromyalgia is a chronic condition that causes intense pain all over the body, as well as a host of other symptoms. Doctors classify fibromyalgia as a syndrome, which means it has a group of signs, symptoms and characteristics that occur together.
Experts are investigating a new blood test that may be able to detect fibromyalgia in up to 50% of sufferers. While this may be available to some patients, others still will have no definitive medical evidence that they're sick.
To make a diagnosis, doctors usually rely on signs and symptoms alone. Complicating the matter, symptoms vary widely from person to person and often, as do their intensity. People with fibromyalgia frequently hurt all over and feel exhausted all the time. Those symptoms often force you to seriously limit your physical activity. It's also common to have problems concentrating and remembering things. A lot of people with fibromyalgia have symptoms so severe that they have to quit or modify their jobs. Because fibromyalgia is frequently misunderstood, family, friends, co-workers and even medical providers may not believe the person is actually sick. A proper diagnosis often takes months.

No simple blood test or X-ray can tell you if you have fibromyalgia. The diagnosis is made solely by taking a history and doing a physical exam. Your doctor may still want to do blood tests or X-rays to rule out illnesses that mimic fibromyalgia.

According to the American College of Rheumatology, before the diagnosis of fibromyalgia can be made, the muscle pain must be present for longer than three months. Also, pain must occur at specific sites on the body called tender points. There are 18 of these sensitive spots. Most are located on the neck and back.



Your doctor makes the diagnosis by applying mild pressure to the tender points. If discomfort occurs at 11 or more of these points, then the physical exam is positive for fibromyalgia.

Adding to these considerable frustrations, it can be difficult or impossible to qualify for Social Security Disability benefits. That's in large part because it used to be commonplace for doctors to mislabel any chronic pain of unknown origin as fibromyalgia, and the diagnosis is still misused somewhat today. Keep in mind that the signs and symptoms vary widely from one person to another. Some people have only a few, while others have many. The intensity of symptoms is different in everyone as well, ranging from mildly annoying to highly debilitating.
Common fibromyalgia symptoms include:

Widespread pain
Morning stiffness
Fatigue
Unrefreshing sleep
Anxiety
Cognitive or memory impairment ("fibro fog")
Depression
Abdominal complaints, including irritable bowel syndrome

Frequently, people with undiagnosed fibromyalgia don't realize that a host of secondary symptoms are related to the pain, fatigue and other primary symptoms. Keeping a detailed list of symptoms can help your doctor make a diagnosis.

Additional fibromyalgia symptoms include:

Painful menstrual cramps
Vision problems
Nausea and dizziness
Weight gain
Chronic headaches
Skin, hair and nail problems
Muscle twitches and feelings of weakness

These lists include the most common symptoms.

Fibromyalgia Treatment

While a lot of fibromyalgia treatments are available, you'll likely need to experiment with different options before you find what works best for you.

Fibromyalgia treatment options include:

Prescription drugs
Complementary/alternative treatments, including massage and physical therapy, chiropractic, and acupuncture
Vitamins and supplements
Moderate exercise, but only if done correctly
Lifestyle changes, including diet, stress management, and pacing

Every case of fibromyalgia is different, and no treatment works for everyone. You'll probably need to work closely with your doctor to custom tailor a treatment regimen that helps you become more functional. Many people benefit from a multidisciplinary approach, which involves several healthcare providers.


Fibromyalgia & Overlapping Conditions

As if all this weren't enough, several other conditions frequently go along with fibromyalgia. Researchers aren't sure whether one condition leads to another or whether they have related underlying causes. Becoming familiar with the symptoms of these disorders can help you determine whether you have more than one.

Overlapping conditions include:

Chronic fatigue syndrome
Irritable bowel syndrome
Temporomandibular joint syndrome (TMJ)
Multiple chemical sensitivity
Myofascial pain syndrome
Restless legs syndrome
Costochondritis (chest pain)

Fibromyalgia History

Doctors coined the term fibromyalgia (fibro = fibrous tissue, my = meaning muscle, algia = pain) in 1976, but it wasn't until 1990 that the American College of Rheumatology developed diagnostic criteria. While muscle pain is the primary symptom, research found that nothing is wrong with the muscles themselves. For a time, researchers thought it could be an autoimmune disease, such as lupus or rheumatoid arthritis. Now it's widely believed in the medical community that a malfunction of the central nervous system (called central sensitization) causes fibromyalgia, leading to new research into treatments and new hope that fibromyalgia will be not only more treatable, but perhaps even curable. To date, three drugs -- Lyrica (pregabalin), Cymbalta (duloxetine), and Savella (milnacipran) -- are FDA approved for treating fibromyalgia, but many other drugs are prescribed off label.

1 kommentarer:

Ronnie said...

Hmm fighting the doctors to make them accept that you're in pain is something I know about. Just got diagnosed with RA (Rheumatoid arthritis). It only took 20 years.

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